What we do

The Gorlin Syndrome Group is a support network offering guidance and information to individuals with Gorlin Syndrome, and their families and carers. The group is organised by people with the condition and their families. We are supported by a medical advisory panel....
Trustees

Trustees

All members of the Board of Trustees carry out their duties on a voluntary basis and in accordance with the Gorlin Syndrome Group Constitution. Trustees give their time to the efficient administration of the charity and the fulfilment of its trusts. Membership of the...

Raise Funds with Every Click

Here’s a easy way to raise money for GORLIN SYNDROME GROUP that does not involve parting with extra cash. It means you can search the web, shop on line from your favourite retailers, trade on eBay and raise money for GORLIN SYNDROME GROUP.  Every...
Medical Advisors

Medical Advisors

The Gorlin Syndrome Group is grateful to the team of medical advisors who give up their time freely to ensure the relevance and accuracy of website content. We are extremely privileged and honoured to have such an experienced medical team on board. Current medical...
Jim Costello – Founder

Jim Costello – Founder

The Gorlin Syndrome Group was formed in the UK in 1992 by Jim Costello (now deceased), with the assistance from the Clinical Genetics Departments at St Mary’s Hospital, Manchester and Birmingham Women’s Hospital, Professor G R Evans and Professor P A...
Howard’s Walk Raises £1,360

Howard’s Walk Raises £1,360

Howard Tyers walked the 26 mile route of Birmingham’s famous Outer Circle on Sunday 5th November 2017 in aid of the Gorlin Syndrome Group. Howard’s inspiration for the walk was in memory of his best man, Jim Costello, founder of the support group. Howard...