The Gorlin Syndrome Group is a support network offering guidance and information to individuals with Gorlin Syndrome, and their families and carers.
The group is organised by people with the condition and their families. We are supported by a medical advisory panel.
Our aims are:
- to offer guidance and information to individuals, their carers, family and friends with Gorlin syndrome
- the advancement of the education of the medical profession and its implications for the family
- to promote research into the causes, effects, treatment and management of Gorlin syndrome.
Get in touch with us via contact us link if your require more information.
Every effort has been made to ensure the information on the Gorlin Syndrome Group website is up to date and accurate. The information is not a substitute for medical care. If you have worries about your condition then speak to your GP or Consultant at the hospital.
Gorlin Syndrome Group shall hold responsibility for the accuracy of the information they publish. Neither the Scheme Operator nor the Scheme Owner have any responsibility whatsoever for costs, losses, or direct or indirect damages or costs arising from inaccuracy of information or omissions published on the website.
The Gorlin Syndrome Group cannot be held responsible for the content or accuracy provided on external web links.
Published on: 17 Jul 2009
Reviewed: 12 Mar 2019