Our History

The first meeting of the group took place in Manchester in 1992, with five patients and their families in attendance. Over the years numbers have increased dramatically, mainly due to the accessibility of the internet and the links we have forged with healthcare...
Successful completion of LeJog Cycle Ride

Successful completion of LeJog Cycle Ride

5 very happy but tired cyclists crossed the finish line at 4.00 pm on 17th Sept 2017. It all started at Lands End in Cornwell on 9th Sept 2017 with David Rowley raising funds for the Gorlin Syndrome Group.  4 other cyclists were also raising funds for their...
Support our work

Support our work

Do you know you can donate on-line to support the work we do? As a small charitable organisation with Trustees who give up their time voluntarily, we are reliant on donations, sponsorship and regular givers to ensure our continuing work. Supporting individuals, their...
Patrons

Patrons

We are grateful to each of our Patrons for their contribution and support of the Gorlin Syndrome Group.  Without their input much of the information within the website would not have been possible. Professor Robert Gorlin Professor Gorlin accepted the...