Support Group based in the US for those people affected by Gorlin Syndrome
New resource for Gorlin Syndrome patients in Australia.
BTUK was founded in 1997, the charity has an impressive track record of providing practical and emotional support to brain tumour patients and their families and has a national network of grassroots supporters
UK charity that supports and represents people who have disfigurements of the face or body from any cause.
National Charity in the UK dedicated to supporting all those affected by cleft lip and/or palate.
The Patients Association is a national healthcare charity and is nearly 50 years old. They exist to help any patient in the United Kingdom with advice and information on how to get the best out of healthcare.
The Counselling Directory provides the UK with a huge counselling support network, enabling those in distress to find a counsellor close to them and appropriate for their needs. This is a free, confidential service that will hopefully encourage those in distress to seek help.
Support network for the facially disfigured to enable them to share their experiences and support and help one another by passing on information and advice on ways to cope with individual problems.
Psychological counselling is not commonly offered on diagnosis or even later on. Practical, medical, emotional and financial support is available. You can also speak to your GP or Consultant.
Website offering dvice and information to individuals with rare and less common cancers or to their families and friends.
UK based charity offering information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.