by Margaret | 24 Apr 2021 | Research and Surveys
On behalf of Gorlin Syndrome Group we are providing everyone with the latest news from Pellepharm. This is about the Patidegib Topical Gel Phase III trial. The trial dis not yield the expected results in preventing the growth of new BCC’s or reducing the number...
by Margaret | 3 Jun 2020 | Treatment
National Voices are co-designing a report for NHS England on the experience of waiting for care before and during Covid-19. They want to understand how waits impact people and their families, particularly those living with long term and chronic...
by Margaret | 1 May 2020 | Clinical Trials
The Gorlin Syndrome Group has today received a communication from PellePharm regards the status of this global trial. PellePharm want to sincerely thank you for your dedicated partnership and for the community’s ongoing support of our clinical program aimed at...
by Margaret | 29 Mar 2020 | Guidance and Support
The Gorlin Syndrome Group is following the recommendations of the UK government regarding COVID-19 (coronavirus). Individuals with Gorlin syndrome, in general, are not considered at greater risk for this virus. There are exceptions, these include being of advanced...
by Margaret | 18 Mar 2020 | Research and Surveys
The All Party Parliamentary Group on Skin’s oral evidence session recently took place in London with a view to moving forward with their mental health and skin disease report. The discussion generated some insightful recommendations for the report. Many people...
