Fundraising

As a small charitable organisation with Trustees who give up their time voluntarily, we are reliant on donations, sponsorship and regular givers to ensure our continuing work. Supporting individuals, their families and carers affected by Gorlin syndrome is what we do. We also aspire to raising awareness of the condition and promoting research into the many symptoms associated to Gorlin syndrome.

Every year the Gorlin Syndrome Group touches the lives of many newly diagnosed individuals and are in contact with them and worried parents looking for information about the condition and signposts to appropriate care for their children. Additionally, we work with Medical Advisers and Researchers to promote new advances in treatment.

Exciting times are ahead regards new treatments and advances are being made.

We have teamed up with Enthuse, a secure donation site for non-profit organisations where donations can be accepted and Gift Aid applied (for UK tax payers). 

All donations ensure our further existence and continuing work and are accepted with thanks from all associated with The Gorlin Syndrome Group.