There are many features which may occur in Gorlin Syndrome, although most are rare. Some of the features are listed below. Ophthalmic problems – in one study, ophthalmic problems affected 26% of people with the syndrome. They include squint (convergent … Continue reading →
Gorlin syndrome or Nevoid Basal Cell Carcinoma syndrome is a medical condition affecting many body systems and is caused by a fault in just one of the thousands of genes which humans possess. The condition is characterised by the development of multiple … Continue reading →
Howard Tyers walked the 26 mile route of Birmingham’s famous Outer Circle on Sunday 5th November 2017 in aid of the Gorlin Syndrome Group. Howard’s inspiration for the walk was in memory of his best man, Jim Costello, founder of … Continue reading →
The Gorlin Syndrome Group is a support network offering guidance and information to patients, their families and carers whose lives are affected by Gorlin Syndrome (also known as Nevoid Basal Cell Carcinoma Syndrome). The group is organised by patients affected … Continue reading →
The first meeting of the group took place in Manchester in 1992, with five patients and their families in attendance. Over the years numbers have increased dramatically, mainly due to the accessibility of the internet and the various links we … Continue reading →
Early in 2016 a study commenced in the UK at Manchester Royal Infirmary and The Royal London Hospital. The study involved testing a new medication called Patidegib Gel in individuals who have Gorlin Syndrome aged 18 – 25 years, also … Continue reading →
A formal word of thanks from Sally Webster, Chair Gorlin Syndrome Group. … Continue reading →
Dental Cone Beam CT is an alternative to conventional CT scans for individuals with Gorlin Syndrome. … Continue reading →
5 very happy but tired cyclists crossed the finish line at 4.00 pm on 17th Sept 2017. … Continue reading →
UV app has been created by the British Association of Dermatologists (BAD) in collaboration with the Met Office. … Continue reading →
