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Germline Genome Editing (Genetic Editing) is a technique through which parts of DNA in an egg, sperm or embryo can be added, removed or replaced. It can be used to prevent hereditary diseases by ensuring DNA sequences known to cause specific conditions are not passed on.
Amarpreet Kaur is a 2nd year PhD Student at the University of Cambridge and is is carrying out the research. Amarpreet has selected a range of genetic conditions which could be suitable for genetic editing. She hopes to hear what people with Gorlin Syndrome think about genetic editing. Their views will be represented in the research. The research will also inform documentation to members of parliament and for future research. For further detail see Research Information.
The research project is targeted at people living in the UK. Research will be carried out in focus groups in various cities throughout the UK. Alternatively there is an option to participate via a digital option. Register your interest on the above research information link. If you have any further questions contact Amarpreet via her email ak997@cam.ac.uk
The Gorlin Syndrome Group are supportive of this research.