by Margaret | 7 Dec 2019 | Research and Surveys
Gorlin Syndrome Group is proud to be part of launching the first ever global Gorlin Syndrome patient community survey. We would like to invite everyone living with Gorlin Syndrome, as well as caregivers, to take the online survey and make their voice heard! The online...
by Margaret | 15 Oct 2019 | Research and Surveys
ABOUT OUR ORGANISATION This volunteer opportunity is offered in conjunction with Manchester University visit their website for further information. The Gorlin Syndrome Group is a UK based registered charity that provides a support network offering guidance and...
by Margaret | 16 Sep 2019 | Research and Surveys
Are you interested in participating in this Phase III trial? This is a global study of the efficacy and safety of Patidegib Topical Gel, 2%, applied topically twice daily to the face of adult participants with Gorlin syndrome. For more information about...
by Margaret | 15 Sep 2019 | Guidance and Support
Changing Faces, a charity based in the UK, offer a wide range of Self-Help for adults, families and young people. Learn new techniques to handle living with an unusual appearance. This includes advice on how to live with confidence, enjoy healthy relationships,...
by Margaret | 12 Sep 2019 | Surveillance
Courtesy of Manchester Centre for Genomic Medicine UK, Saint Mary’s Hospital Adults should check their own skin regularly and report any concerns to their GP or specialist. Concerns about any unusual symptoms in children, such as neurological symptoms, or change...
