The questions below are examples of the many inquiries made by patients. Get in touch with us via our Contact Us page if you have a question or are struggling with any aspect of the condition.
What are bifid ribs and are they a symptom of the syndrome?
Yes they are. Bifid ribs are ribs that are split in two. They cause no problems and need no attention.
Continue reading →My thumbs are very short from the middle joint to the end. Is this part of the syndrome?
It does appear that a large number of people with Gorlin Syndrome have this problem. It is nothing to worry about and will cause no problems.
Continue reading →Is hammer toe related to Gorlin Syndrome?
Yes. The second toe tends to be longer than the big toe resulting in the second toe getting pushed back.
Continue reading →Do I need to stay out of the sun?
In Gorlin Syndrome individuals are at a greater risk of developing BCCs. It is important to stay in the sun. Protect yourself by using a sun block or high factor sun screen. Cover up with hats, long sleeves and sunglasses … Continue reading →
Do ovarian fibromas affect fertility?
There is no evidence to suggest that fibromas or cysts affect fertility.
Continue reading →Should I be x-rayed for jaw cysts?
Jaw cysts should be treated when small. The only sure way of detecting a jaw cyst is by x-ray or MRI. It is therefore sensible for regular screening at intervals recommended by your geneticist or oral consultant. This will be … Continue reading →
How often should screening be done for jaw cysts?
In childhood annual dental screening should start at about 8 years of age. Screening should continue into adult life. However, the frequency will depend on the findings of each X-ray or MRI. To ensure effective management of jaw cysts they … Continue reading →
What are ovarian fibromas
A fibroma is a solid benign lump on the ovary. Calcium can also build up on the ovary. Studies show that 20% – 25% of women with Gorlin syndrome have ovarian fibromas and/or calcification (a build up of calcium). They cause … Continue reading →
Is it safe to have radiotherapy treatment?
In some patients with Gorlin Syndrome radiotherapy may lead to the rapid development of new basal cell carcinomas and therefore should be used under special / exceptional circumstances.
Continue reading →What is Moh’s Surgery?
Mohs surgery is a precise surgical technique used to treat skin cancer. During Mohs surgery, thin layers of cancer-containing skin are removed and examined until only cancer-free tissue remains. Mohs surgery is also known as Mohs micrographicsurgery.
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