by Margaret | 22 Jan 2020 | Genetics
A wide range of people attend genetic counselling services and can include newly diagnosed patients, new parents or couples planning a family. Genetic counsellors work along side clinical consultants, nursing and primary care teams so you may see more than one member...
by Margaret | 1 Jan 2020 | Research and Surveys
Given the run up to the Festive Season is such a busy time for all many of you may not have had the time to complete the Gorlin Syndrome Global Survey. As a result a decision has been reached to extend the closing date to allow people the opportunity to participate....
by Margaret | 15 Dec 2019 | Research and Surveys
The Gorlin Syndrome Group is proud to be part of launching the first ever global Gorlin Syndrome patient community survey. If you are living with the condition or if you are a caregiver to someone with Gorlin Syndrome, please take the online survey and make their...
by Margaret | 7 Dec 2019 | Research and Surveys
Don’t miss out on an opportunity to join the trial. Recruitment target reached and now closed. Screening for the PellePharm Gorlin study will end next Friday, November 8th 2019. As a result of unforeseen issues in the UK the screening period at sites in London,...
by Margaret | 7 Dec 2019 | Research and Surveys
The Gorlin Syndrome Group UK are proud to work in partnership with the Gorlin Syndrome Alliance in the USA, PellePharm and LEO Pharma to advance the development and research of new treatments for Gorlin Syndrome. We call it Partnership4Change. Watch the video to learn...
