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Counselling is not commonly offered on diagnosis or even later on. If you feel you need help in coming to terms with Gorlin Syndrome speak to your GP or Consultant.
Practical, medical, emotional and financial support is also available from:
They can also be contacted on the telephone – 0808 808 2020.
If you are worried about your condition you can also speak in confidence to the Gorlin Syndrome Group. You may be struggling to find information on our website If that is the case email us via the contact us page or telephone on 01772 962026. If no one is available leave your name and telephone number and we will get back to you.