by Margaret | 7 Dec 2019 | Research and Surveys
Don’t miss out on an opportunity to join the trial. Recruitment target reached and now closed. Screening for the PellePharm Gorlin study will end next Friday, November 8th 2019. As a result of unforeseen issues in the UK the screening period at sites in London,...
by Margaret | 7 Dec 2019 | Research and Surveys
The Gorlin Syndrome Group UK are proud to work in partnership with the Gorlin Syndrome Alliance in the USA, PellePharm and LEO Pharma to advance the development and research of new treatments for Gorlin Syndrome. We call it Partnership4Change. Watch the video to learn...
by Margaret | 7 Dec 2019 | Research and Surveys
Gorlin Syndrome Group is proud to be part of launching the first ever global Gorlin Syndrome patient community survey. We would like to invite everyone living with Gorlin Syndrome, as well as caregivers, to take the online survey and make their voice heard! The online...
by Margaret | 15 Oct 2019 | Research and Surveys
ABOUT OUR ORGANISATION This volunteer opportunity is offered in conjunction with Manchester University visit their website for further information. The Gorlin Syndrome Group is a UK based registered charity that provides a support network offering guidance and...
by Margaret | 16 Sep 2019 | Research and Surveys
Are you interested in participating in this Phase III trial? This is a global study of the efficacy and safety of Patidegib Topical Gel, 2%, applied topically twice daily to the face of adult participants with Gorlin syndrome. For more information about...
by Margaret | 20 Aug 2019 | Research and Surveys
Courtesy of Camilla Krogh Lauritzen, Chief Patient Officer, Rare Diseases, LEO Pharma At LEO Pharma, we know that people living with rare diseases are experts in their own right: They are indeed disease experience experts. We also appreciate the relevance for us to...
