by Margaret | 18 May 2018 | Guidance and Support
Sun damage can cause premature aging, wrinkles and skin cancer. Sunlight may be one of the environmental agents promoting the appearance of BCCs in Gorlin Syndrome. Whatever your age, the best way to enjoy the sun safely and protect your skin from sunburn is to use a...
by Margaret | 15 May 2018 | Guidance and Support
Psychological counselling is not commonly offered on diagnosis of Gorlin Syndrome or even later on. If you feel that you need extra help in coming to terms with your condition or any other aspect of your life, don’t be afraid to ask for this via your GP or...
by Margaret | 15 May 2018 | Guidance and Support
Recently published report courtesy of Rare Disease UK. This report is the result of a project that, through imaginative and creative techniques, provided children and young people the opportunity to share their stories, in their own words. This gives us a valuable...
by Margaret | 14 May 2018 | Guidance and Support
Rare Disease UK report reveals that: – Living with a rare condition can have a huge impact including anxiety, stress, low mood, emotional exhaustion and suicidal thoughts. – Many of the drivers of poor mental health reflect issues that are specific to managing a...
by Margaret | 18 Apr 2018 | Guidance and Support
NHS Carers Direct An extremely useful website dedicated to carers. A full range of advice and information for every aspect of a carer’s life. Crossroads Care (link not available at the moment 18.4.18) Crossroads Care is Britain’s leading provider of...
by Margaret | 18 Apr 2018 | Guidance and Support
Citizen’s Advice Bureau Citizen’s Advice Bureau (CAB) On-line benefits advice. Department of Works and Pensions The Department of Works and Pensions for information about the full range of benefits. Turn2us On-line service which helps people access...
