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The Gorlin Syndrome Group is proud to be part of launching the first ever global Gorlin Syndrome patient community survey. If you are living with the condition or if you are a caregiver to someone with Gorlin Syndrome, please take the online survey and make their voice heard!
Link to the survey
The survey will take approximately 40 minutes to complete. You will not be able to exit the survey once you start it, so please take it at a time when you can complete in one sitting.
The survey is available in the following languages: English, German, French, Italian, Dutch, Russian, Turkish, Portuguese and Mandarin.
Read more about the survey and remember to spread the word to make sure that we have as many people take the survey as possible.