The Gorlin Syndrome Group work with organisations in Scotland to raise awareness of Gorlin syndrome. However, we are aware that only a handful of individuals with the condition are currently in touch with us.
It is hoped a recent press release will raise awareness to individuals affected by the condition and to healthcare providers. Are you or someone you know affected by the condition and need support? We would love to hear from you so do get in touch via the Contact Us link
We are grateful to Graeme Barrett for sharing his experience. To see the article follow this link