The Gorlin Syndrome Group has worked along side a number of Scottish organisations over the years with a view to raising awareness of Gorlin syndrome (also known as Nevoid Basal Cell Carcinoma syndrome). However, we are aware that only a handful of individuals have made contact with the group.
We are hoping that a press release yesterday in the Daily Record will go some way to further raising awareness of the condition to individuals affected by the condition and to healthcare providers.
We are extremely grateful to Graeme Barrett for sharing his story and experience of living with Gorlin syndrome. To access the article follow the link https://www.mirror.co.uk/news/uk-news/cancer-dad-loses-out-jobs-13781940
If you or someone you know is affected by the condition then do please get in touch via our Contact Us link