by managedSupport | 28 May 2025 | Events, News
Our annual Gorlin Syndrome Group community gathering is taking place on Saturday 25th October this year, in central Birmingham.. The day will start from 10am and close around 4.30pm. The gathering is an opportunity for us all – whether you have Gorlin or know someone...
by managedSupport | 7 Jun 2023 | News, Support our work
David Rowley, previous Chair of Gorlin Syndrome Group, is running his first Half Marathon in September of this year, taking part in the Robin Hood Half in Nottingham, and raising funds for Gorlin Syndrome Group. The charity and this rare genetic condition are very...
