Research and surveys
Older adults boosted by vitamin D tablets
THIS TEXT IS FROM NEW SCIENTIST 5TH FEBRUARY 2022 NEWS / HEALTH: http://doi.org/gn9xdm Older adults boosted by vitamin D tablets TAKING supplements of vitamin D prevents some people developing an autoimmune disease, at least for those aged over 50, in a study...
Patedigib Open Licence Extension (OLE) Update
On behalf of Gorlin Syndrome Group we are providing everyone with the latest news from Pellepharm. This is about the Patidegib Topical Gel Phase III trial. As previously stated the trial did not yield the expected results in preventing the growth of new BCC's or...
Patedigib Open Licence Extension (OLE)
On behalf of Gorlin Syndrome Group we are providing everyone with the latest news from Pellepharm. This is about the Patidegib Topical Gel Phase III trial. The trial dis not yield the expected results in preventing the growth of new BCC's or reducing the number of...
APPG on Skin surveys
The All Party Parliamentary Group on Skin's oral evidence session recently took place in London with a view to moving forward with their mental health and skin disease report. The discussion generated some insightful recommendations for the report. Many people were...
Gorlin Syndrome Patient Community Survey – Closing Date extended
Given the run up to the Festive Season is such a busy time for all many of you may not have had the time to complete the Gorlin Syndrome Global Survey. As a result a decision has been reached to extend the closing date to allow people the opportunity to participate....
Gorlin Syndrome Patient Community Survey Launch
The Gorlin Syndrome Group is proud to be part of launching the first ever global Gorlin Syndrome patient community survey. If you are living with the condition or if you are a caregiver to someone with Gorlin Syndrome, please take the online survey and make their...
Recruitment Deadline for Patidegib Phase III Trial
Don't miss out on an opportunity to join the trial. Recruitment target reached and now closed. Screening for the PellePharm Gorlin study will end next Friday, November 8th 2019. As a result of unforeseen issues in the UK the screening period at sites in London,...
Partnership4Change
The Gorlin Syndrome Group UK are proud to work in partnership with the Gorlin Syndrome Alliance in the USA, PellePharm and LEO Pharma to advance the development and research of new treatments for Gorlin Syndrome. We call it Partnership4Change. Watch the video to learn...
MAKE YOUR VOICE HEARD! TAKE THE 2019 GORLIN SYNDROME PATIENT COMMUNITY SURVEY
Gorlin Syndrome Group is proud to be part of launching the first ever global Gorlin Syndrome patient community survey. We would like to invite everyone living with Gorlin Syndrome, as well as caregivers, to take the online survey and make their voice heard! The online...
Conference Coordinator Volunteer
ABOUT OUR ORGANISATION This volunteer opportunity is offered in conjunction with Manchester University visit their website for further information. The Gorlin Syndrome Group is a UK based registered charity that provides a support network offering guidance and...