Welcome to
Gorlin Syndrome Group
The Gorlin Syndrome Group is a UK-based support network offering guidance and information to individuals with Gorlin syndrome, and their families and carers.
If you, or someone you know, has been diagnosed with Gorlin syndrome there are undoubtedly lots of questions and emotions right now.
We know.
We’ve been there.
Take a look at our booklet About Gorlin Syndrome and please do contact us if you have any questions.
We are a patient support group and registered charity offering guidance and information to individuals with Gorlin syndrome, their families and carers.
The group is organised by volunteer trustees, supported by a medical advisory panel.
We aim to:
- Offer guidance & information to individuals with Gorlin syndrome, their family, carers and friends
- Raise awareness of Gorlin syndrome
- Promote research into Gorlin syndrome
Gorlin syndrome is a rare medical condition caused by a fault in one of the thousands of genes we possess.
It affects many areas of the body and increases the risk of developing cancerous and noncancerous tumours.
