A formal word of thanks from Sally Webster, Chair Gorlin Syndrome Group.
On behalf of the Gorlin Syndrome Group I would like to express our sincere thanks and gratitude to David, Darren, Jody, Simon and John, along with their support team for such a fantastic fundraising event.
To cycle 1000 miles (Lands End to John O’Groats) in 9 days to raise £2,290 for the continued work of the Gorlin Syndrome group is so very much appreciated.
This enables us to continue to support individuals and families with Gorlin Syndrome, and to promote new and ongoing research into new ways to manage and treat the condition.
So from every individual, family member or friend who have, or support someone with Gorlin Syndrome, a huge and heartfelt thank you to you all