Personal Information

Protecting visitor’s privacy is hugely important to the Gorlin Syndrome Group. We don’t capture and store any personal information about you when you visit, except where you send us your personal details via email or the contact form. When you do send us your personal data it will be used exclusively for providing you with the information you have requested. We don’t pass any of your personal data to outside organisations and/or individuals, except with your express consent, unless there is a lawful requirement to do so.

If you wish to know what personal information we hold about you and/or would like us to remove your personal information from our databases then please contact us.

Google Analytics

We use Google Analytics to analyse the use of our website and help us create a more useful and easy to use site. This is a web analytics service provided by Google. Google Analytics uses “cookies”, which are text files placed on your computer, to collect information such as visitor numbers and the most popular pages.

The information generated by the cookie about your use of the website (including your IP address) will be transmitted to and stored by Google on servers in the United States. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google’s behalf. Google will not associate your IP address with any other data held by Google.

If you want to see more information about how Google uses this data and what they do with the data they collect, please view their privacy policy.


This website,, uses cookies to assist in navigation and session management so visitors to our site remain anonymous.

For more information on cookies and how to control them please visit the website of the Information Controllers Office –Cookies – advice for members of the public.