It is strongly recommended that patients:
Stay in the shade whilst the sun at its highest, usually between 11 am and 3 pm.
Wear wide brimmed hats and protective clothing (long sleeved, high density cool shirts or blouses).#
Wear 100% UV protective sunglasses as the skin surrounding the eyes. Make sure that your sunglasses carry quality marks such as BS Kite and CE marks. These will guarantee that your sunglasses are giving you a high level of protection against UBV and UBA rays of the sun.
Use sun-block or high factor sunscreen. The higher the number the better the protection. Look at the label and ensure that the product protects from UVA and UVB and that it carries a 4 star rating.
Sun protective clothing is becoming increasingly more popular and is available for adults and children at many retailers and web-based organisations. Definitely worth checking out. A larger than average had size in Gorlin Syndrome sometimes makes it difficult to purchase head wear. Details about a range of stockists can be accessed on the Web Links page of the site.
More information about being safe in the sun can be accessed at Sunsmart