At Oxford University, Dr. Chris Nellaker is working on teaching computers to recognize rare genetic syndromes through photos of patients. He is passionate about making it easier for doctors to help families to identify these syndromes. Dr. Nellaker is using … Continue reading →
British Skin Foundation UK Charity dedicated to raising money for research into all skin diseases, their treatments, prevention and possible cures. Useful patient area about ‘Staying safe in the sun’. UK Dermatology Clinical Trials Network (UK DCTN) Open to anyone … Continue reading →
British Association of Skin Camouflage British Association of Skin Camouflage offers advice and assistance on camouflage products and application. British Red Cross For people with scars or other disfiguring skin conditions, skin camouflage can offer a simple route to improved … Continue reading →
NHS Choices Living with a long term condition and self care. NHS24 Scotland The Scottish Support Group Directory is now live on the NHS24 website. Also includes information and advice about many medical conditions and illnesses. NHS Direct Wales NHS … Continue reading →
Genetics Alliance UK A national alliance of patient support groups for all those affected by genetic conditions. Useful source of information, expertise and support for all. National Voices (Previously Long Term Conditions Alliance) is the new umbrella organisation established by … Continue reading →
British College of Obstetricians and Gynaecologists Offers information for patients and their families about services and a frequently asked questions section. … Continue reading →
British Society for Human Genetics (BSHG) British Society for Human Genetics (BSHG) An independent body representing UK human genetics professionals. This site may be of interest to readers. NHS National Genetics Department and Education Centre Works with a range of … Continue reading →
Independent Parental Special Educational Advice IPSEA is a national charity providing free legally based advice to families who have children with special educational needs. All our advice is given by trained volunteers. … Continue reading →
Fledglings A charity which helps parents and carers of disabled children and those with special needs to find solutions to practical problems of everday living. Product solutions for children’s special needs. … Continue reading →
British Association of Dermatologists The British Association of Dermatologists has a public access area which gives information about patient support groups and skin conditions. Dermnetnz A useful Dermatology resource for patients and healthcare professionals giving extensive information about skin diseases, … Continue reading →