At Oxford University, Dr. Chris Nellaker is working on teaching computers to recognize rare genetic syndromes through photos of patients. He is passionate about making it easier for doctors to help families to identify these syndromes. Dr. Nellaker is using … Continue reading →
NHS Carers Direct An extremely useful website dedicated to carers. A full range of advice and information for every aspect of a carer’s life. Crossroads Care (link not available at the moment 18.4.18) Crossroads Care is Britain’s leading provider of … Continue reading →
Citizen’s Advice Bureau Citizen’s Advice Bureau (CAB) On-line benefits advice. Department of Works and Pensions The Department of Works and Pensions for information about the full range of benefits. Turn2us On-line service which helps people access information on all benefits … Continue reading →
BCCNS Life Support Network Support Group based in the US for those people affected by Gorlin Syndrome Australian Gorlin Syndrome Support Group New resource for Gorlin Syndrome patients in Australia. Brain Tumour UK BTUK was founded in 1997, the charity … Continue reading →