↓
 
  • Home
  • Privacy
  • Contact Us
GSG Site icon

gorlin syndrome group

Supporting Families - Promoting Research - Raising Awareness

Gorlin Syndrome Group

Supporting Families - Promoting Research - Raising Awareness

  • Home
  • Guidance and Support
  • About Gorlin Syndrome
  • Genetics
  • Diagnosis
  • Surveillance
  • Treatment
  • Research
  • FAQ

Author Archives: Neale Hayward-Shott

Oxford University Research – Rare Genetic Syndromes

Gorlin Syndrome Group Posted on April 20, 2018 by Neale Hayward-ShottApril 20, 2018

At Oxford University, Dr. Chris Nellaker is working on teaching computers to recognize rare genetic syndromes through photos of patients. He is passionate about making it easier for doctors to help families to identify these syndromes. Dr. Nellaker is using … Continue reading →

Posted in Research and Surveys

Carers Support

Gorlin Syndrome Group Posted on April 18, 2018 by Neale Hayward-ShottFebruary 15, 2019

NHS Carers Direct An extremely useful website dedicated to carers. A full range of advice and information for every aspect of a carer’s life. Crossroads Care (link not available at the moment 18.4.18) Crossroads Care is Britain’s leading provider of … Continue reading →

Posted in Guidance and Support

Benefits and Finance

Gorlin Syndrome Group Posted on April 18, 2018 by Neale Hayward-ShottFebruary 15, 2019

Citizen’s Advice Bureau Citizen’s Advice Bureau (CAB) On-line benefits advice. Department of Works and Pensions The Department of Works and Pensions for information about the full range of benefits. Turn2us On-line service which helps people access information on all benefits … Continue reading →

Posted in Guidance and Support

External Links To Additional Support

Gorlin Syndrome Group Posted on April 18, 2018 by Neale Hayward-ShottFebruary 15, 2019

BCCNS Life Support Network Support Group based in the US for those people affected by Gorlin Syndrome Australian Gorlin Syndrome Support Group New resource for Gorlin Syndrome patients in Australia. Brain Tumour UK BTUK was founded in 1997, the charity … Continue reading →

Posted in Guidance and Support

What is Gorlin Syndrome

January 15, 2018 by Neale Hayward-Shott Posted in About Gorlin Syndrome

Recent Posts

  • European Reference Networks
  • Patidegib topical gel phase 3 trial.
  • Vismodegib in the UK
  • Raising Awareness in Scotland
  • Understanding Clinical Trials

Categories

  • About Gorlin Syndrome
  • About Us
  • Clinical Trials
  • Diagnosis
  • FAQ
  • Genetics
  • Guidance and Support
  • News
  • Research and Surveys
  • Surveillance
  • Treatment

Archives

Charity Checkout Donate
connect with others 

Gorlin Syndrome Group

11 Blackberry Way
Penwortham
Preston
Lancashire
PR1 9LQ
United Kingdom

Registered Charity Number 1096361

Link to Charity Commission

 

The Gorlin Syndrome Logo

GSG Site icon
The "gs" in the fingerprint shape represents the patient / individual dealing with Gorlin Syndrome and the second "g" represents the "Group" as a place for the individuals to go for information and support.

Follow Us:

©2019 - Gorlin Syndrome Group
↑