Treatment Priorities

To ensure effective management of Gorlin syndrome it is vital that individuals are treated in the early stages and for this reason regular surveillance is recommended.

Basal Cell Carcinomas 

90% of individuals with Gorlin Syndrome will develop basal cell carcinomas at some stage in their life.

It is vital that individuals are treated in the early stages and for this reason regular surveillance is recommended to ensure:

  • Prompt treatment for best cosmetic effects
  • Eradication of aggressive basal cell carcinomas
  • Particular attention to individual lesions occurring around the eyes, nose, mouth and ears
  • Preservation of normal tissue to prevent disfigurement

It is highly recommended that indiviiduals with Gorlin Syndrome are seen on a regular basis by an experienced Dermatologist. 


 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
 
Checkout
Gorlin Syndrome community on HealthUnlocked
website security