Do you know you can donate on-line to support the work we do?
As a small charitable organisation with Trustees who give up their time voluntarily, we are reliant on donations, sponsorship and regular givers to ensure our continuing work. Supporting individuals, their families and carers affected by Gorlin Syndrome is what we do. We also aspire to raising awareness of the condition and promoting research into the many symptoms associated to Gorlin Syndrome.
Every year the Gorlin Syndrome Group touches the lives of many newly diagnosed individuals and are in contact with them and worried parents looking for information about the condition and signposts to appropriate care for their children. Additionally, we work with Medical Advisers and Researchers to promote new advances in treatment.
Exciting times are ahead regards new treatments and advances are being made.
We have teamed up with Charity Checkout a secure donation site for non-profit organisations where donations can be accepted and Gift Aid applied (for UK tax payers). The Donate button is included in the right hand menu. A donate button can also be accessed on the left menu of the Gorlin Syndrome Group Facebook page.
All donations ensure our further existence and continuing work and are accepted with thanks from all associated with The Gorlin Syndrome Group.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361