Research and Surveys
A number of press releases following release of patient stories in the UK. Links below.
There have been a significant number of press releases since the launch of the patient survey results, some of the links are listed below:
Other articles are expected so don't forget to visit again.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
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