Research and Surveys
Results of the Gorlin syndrome survey to be presented at the European Association of Dermato-oncology (EADO) Conference.
The event is scheduled to take place in Hamburg 17th - 20th July 2013 at the World Congress of Melanoma. This the 8th World Congress of Melanoma will be organized in conjunction with the World Meeting of Melanoma Centers, the Post-Chicago Melanoma Meeting 2013 and the 9th Congress of the European Association of Dermato-Oncology. The latter event will be held at the end of the congress and includes non-melanoma skin cancer and cutaneous lymphomas as topics.
A press release due to go out week commencing 15th July 2013 will focus on why there is a need for better support for individuals with Gorlin syndrome who are undergoing multiple surgical procedures. We are keen to identify any patients who would be willing to speak to the media. Kindly get in touch via email or telephone (details on the Contact Us link) at the earliest opportunity, preferrably by Monday, 15th July 2013.
This is a real opportunity to further raise awareness of the condition and the needs of Gorlin syndrome patients to the public and healthcare professionals alike.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
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