News

News

Gorlin Syndrome Survey - Summary Overview

In August 2013, the Gorlin Syndrome Group conducted a media outreach activity to highlight its recent survey.

Read more: Gorlin Syndrome Survey - Summary Overview

UK Strategy for Rare Diseases

Rare Disease UK (RDUK) has been campaigning for a UK Strategy for rare diseases.

Read more: UK Strategy for Rare Diseases

Gorlin Syndrome again in the news

Gorlin Syndrome featured in Mancunian Matters.

Read more: Gorlin Syndrome again in the news

New Treament for Advanced Skin Cancer Available in UK

New oral treatment Erivedge (vismodegib) now authorised for UK use.

Read more: New Treament for Advanced Skin Cancer Available in UK

Erivedge receives conditional EU approval

Roche announce that the European Commission has granted conditional approval to Erivedge.

Read more: Erivedge receives conditional EU approval

"Efficacy and Safety of Vismodegib" Report Released

The New England Journal of Medicine yesterday released a report on the "Efficacy and Safety of Vismodegib in advanced Basal Cell Carcinoma".

Read more: "Efficacy and Safety of Vismodegib" Report Released

Considering PDT Treatment?

If you are considering Photodynamic Therapy as a treatment for basal cell carcinomas you may be interested in reading all about it.

Read more: Considering PDT Treatment?

Review of Prescription Charges

Cancer patients urged to apply for free prescriptions from 25th January 2009. People being treated for cancer will be eligible for free prescriptions from 1st April 2009 and can apply for free prescriptions from today.

Read more: Review of Prescription Charges


 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
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