News

Rare Disease UK Publish Progress Report

UK Rare Disease Forum (the group charged with monitoring the implementation of the UK Strategy for Rare Diseases) publishes first progress report. 

 

The report was published on the 29th February 2016 to coincide with International Rare Disease Day.  It acknowledges the work that has been done so far whilst recognising that much remains to be done to meet the needs of individuals affected by rare condition. 

The report can be accessed at the Rare Disease UK website


 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
 
Checkout
Gorlin Syndrome community on HealthUnlocked
website security