UK Rare Disease Forum (the group charged with monitoring the implementation of the UK Strategy for Rare Diseases) publishes first progress report.
The report was published on the 29th February 2016 to coincide with International Rare Disease Day. It acknowledges the work that has been done so far whilst recognising that much remains to be done to meet the needs of individuals affected by rare condition.
The report can be accessed at the Rare Disease UK website.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361