As a patient or service user, being able to trust the health and care information you access is really important. Having this trust will give you the confidence to make informed decisions about the right health and care needs for you and your family.
Supported by NHS England, The Information Standard is a certification programme developed to ensure that public-facing health and care information, produced by organisations, is created to a set of best practice principles, uses only recognised evidence sources and presents the information in a clear and balanced way.
The Information Standard quality mark, which can only be displayed by members, is a quick and easy way for the public to identify reliable and trustworthy information producers and sources of information.
For more details on what it means to have achieved Information Standard certification, follow this link.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361