Information Standard

Information Standard

As a patient or service user, being able to trust the health and care information you access is really important. Having this trust will give you the confidence to make informed decisions about the right health and care needs for you and your family.

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Information Standard Certification

Gorlin Syndrome Group achieves Information Standard certification.

Read more: Information Standard Certification

Moderation of Social Media Websites

Gorlin Syndrome Group has set up a number of social media platforms, including HealthUnlocked, Facebook and Macmillan to provide general information about what we do, and to give individuals, their relatives and carers affected by Gorlin syndrome the chance to talk to each other.

Read more: Moderation of Social Media Websites

 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
Gorlin Syndrome community on HealthUnlocked
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