Counselling is not commonly offered on diagnosis or even later on. If you feel that you need extra help in coming to terms with Gorlin Syndrome or any other aspect of your life, don't be afraid to ask for this via your GP or Consultant.
Practical, medical, emotional and financial support is also available from:
They can also be contacted on the telephone - 0808 808 2020.
If you are worried about any aspect of your condition you can also soeak in confidence to the Gorlin Syndrome Group or require further information on any aspect of yof Gorlin Syndrome and are unable to find it on our website email with your query via the contact us page or telephone us on 01772 496849. If no one is available leave your name and telephone number and we will get back to you.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361