Babies and Children

Successful completion of LeJog Cycle Ride

5 very happy but tired cyclists crossed the finish line at 4.00 pm on 17th Sept 2017. 

It all started at Lands End in Cornwell on 9th Sept 2017 with David Rowley raising funds for the Gorlin Syndrome Group.  4 other cyclists were also raising funds for their chosen charities.  The 5 cyclists, accompanied by 2 support staff travelled just under 1000 miles in 9 days with just over 40,000 feet to climb to raise funds for good causes. 

David kept us all updated on our Facebook group on a daily basis with comments on each day's ride and with pictures of some of the stunning scenery as the cyclists made their way through England and Scotland. 

There were many challenges along the way with a broken bike frame meaning a replacement was required, many punctures to be repaired, a near miss with an inconsiderate lorry driver on a narrow Scottish road, a snapped gear cable and another replacement bike, and not forgetting weather conditions in the UK. However, reflecting on the photograph's there was some stunning scenery.

On completion of the event David quoted 'It was an amazing feeling to cross the line after 9 days in the saddle and almost 1000 miles cycled. A great challenge I would recommend to anyone'.  David is pictured at the finish line.

In total the 5 riders raised over £10.000 between. David's supporters raised the sum of £2255 for the Gorlin Syndrome Group for which we are extremely grateful. As a small voluntary organisation it is donations of this kind that ensure the continuing work of the group.  

Some of our current projects involve working in collaboration with 3 pharmaceutical companies on potential and current clinical trials, a university in Scotland in respect of development of a new medication for Gorlin Syndrome and staff at Christie Hospital / Macmillan on a patient survey. Our main aims are supporting individuals with Gorlin Syndrome and their families, raising awareness of the condition and promoting research. 

An admiral achievement!  Our sincere thanks go to David and his fellow cyclists, their support team and to the many supporters for their encouragement along the way. 

 


 Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello.  We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support. 
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361 
 
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