Last Updated on Friday, 29 March 2013 10:43
Published on Friday, 17 July 2009 10:03
We are grateful to each of our Patrons for their contribution and support of the Gorlin Syndrome Group. Without their input much of the information within the website would not have been possible.
Professor Robert Gorlin
Professor Gorlin accepted the nomination to become Patron on visiting St Mary's Hospital, Manchester on 1st November 1994.
Professor Gorlin (now deceased) is respected worldwide for his contributions in the fields of Clinical, Dental and Craniofacial Genetics and has been a significant help to all those affected by the condition which bears his name. He and Dr R W Goltz described two patients with the syndrome, and reviewed the existing literature in a medical article in 1960. In 1965 he reported a further 6 patients and reviewed 38 reports of the syndrome involving more than 150 individuals. Since he has written several reviews of the condition.
"We were deeply saddened to hear the news of Professor Gorlin's death. He died on Tuesday, 29th August 2006 after a long illness. We know how hard we worked over the years contributing to the understanding of genetic conditions, his expertise and talent in this particular area of medicine will be sorely missed. I know that on a personal level my late husband Jim would want me to express the thanks of the Costello family for Bob's sterling work, his support and friendship over the years, as would all those members of the Gorlin Syndrome Group UK who had the pleasure of meeting him. I know I speak for all when confirming what an honour it has been for so many of us to be drawn together in his name".
Margaret Costello - 30.8.2006
Professor P A Farndon - Consultant Clinical Geneticist
Professor Farndon currently holds the post of Director at the National Genetics Education and Development Centre in Birmingham. Peter has a long standing interest and experience in genetic education and holds an MSc in medical education. Peter has been involved with the practical application of genetics for patients for nearly 25 years, after a broad training in medicine and paediatrics. He gained an MD for research in Gorlin syndrome, a condition which predisposes to skin cancer.
Professor G R D Evans - Consultant in Medical Genetics
Professor Evans is a Professor and Consultant of Medical Genetics at the Regional Clinical Genetics Unit, St Mary's Hospital in Manchester. He was trained at Saint Mary’s Hospital Medical School London and initially specialised in paediatrics before training in Genetics at Saint Mary’s Manchester. He has established a national and international reputation in clinical and research aspects of cancer genetics, particularly in neurofibromatosis and breast cancer.
Gareth has developed a clinical service for cancer genetics in the North West Region, which is nationally regarded.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361