The Gorlin Syndrome Group is grateful to the team of medical advisors who give up their time freely to ensure the relevance and accuracy of website content. We are extremely priveleged and honoured to have such an experienced medical team on board.
Current medical advisors:
Dr Ernest Allan is a Consultant Clinical Oncologist working in the Photodynamic Therapy department at the Christie Foundation Trust in Manchester.
Dr Allan had an extensive experience in surgery and radiotherapy before taking the pre-clinical research from the Patterson Institute and initiating a clinical research project. This developed into a pioneering clinical service for non-melanoma skin cancer that grew into a substantial clinic with a national and international reputation.
Dr Allan has a special interest in Gorlin syndrome and is a member of the multidisciplinary Gorlin syndrome treatment group located within Central Manchester University Hospitals NHS.
Professor Gareth Evans was trained at Saint Mary's Hospital Medical School London and initially specialised in paediatrics before training in Genetics at Saint Mary's Hospital Manchester.
He has establised a national and international reputation in clinical and research aspects of cancer genetics, particularly in neurofibromatosis and breast cancer. He has developed a clinical service for cancer genetics in the North West region, which is nationally regarded. He is an important opinion leader nationally through membership of committees and is chairman of the NICE Familial Breast Cancer Guideline Development Group. He lectures throughout the UK and internationally on hereditary breast cancer and cancer syndromes.
Professor Evans is a member of a specialist skin cancer multi disciplinary team in Manchester which offers regular clinics to Gorlin syndrome patients.
Dr John Lear is Consultant Dermatologist at Manchester Royal Infirmary and Hope Hospital and a BMI at The Alexandra Hospital. He is a senior lecturer at the University of Manchester. His main interest is the diagnosis and management of skin cancer and pigmented and precancerous lesions, with a particular interest in the surgical and non surgicel management of these conditions, including topical photodynamic therapy. Having qualified in medicine in 1991 at Leicester University, Dr Lear underwent general medical training in the Midlands, he then undertook this dermatological training in the Midlands and the South West as a senior registrar before taking up his present consultant post in August 2010. Dr Lear has published over 100 papers on the genetics, epidemiology, diagnosis and therapy of skin cancer. He has undertaken numerous clinical trials in this area and continues to be involved in research into the latest developments in skin cancer therapy, including oral hedgehog pathway inhibitors for advanced basal cell carcinoma. He runs dedicated clinics for skin problems for those with renal transplants and other immunosuppressed groups, both groups who represent a significant challenge in skin cancer manager. Dr. Lear set up and runs the photodynamic therapy service at Manchester Royal Infirmary for the treatment of superficial skin cancers and precancerous lesions.
He is chair of the specialist skin cancer MDT meeting for Great Manchester, is a member of the NCRI Melanoma and Nonmelanoma skin cancer study group and the NCIN Skin Cancer sub group. Dr Lear is a founding member of the British Society for Skin Care in immunogompromised individuals. He is actively involved in teaching and training, both undergraduates, dermatological trainees and GPs. He organises numerous courses and meetins for GPs, including annual courses, evening meetings and teach a treat type events.
Dr Kai Ren Ong is a clinical geneticist at the department of Clinical Genetics, Birmingham Wonen's NHS Foundation Trust, with a specialist interest in cancer genetics and Gorlin syndrome. She runs a monthly Gorlin syndrome clinic at the Birmingham Women's Hospital and is the clinical lead for the West Midlands Regional Genetics Service and also cancer genetics lead. She trained at Manchester and Cambrdge Universities, gaining an intercalated BSc from Manchester and her medical degrees from Cambridge. She went on to train in East Anglia, London and Birmingham in junior medical posts, then trained in clinical genetics in Birmingham. During her training she spent two years working at the Christie Hospital in a research post, culminating in the award of of her MD degree from Manchester University, which looked at the effects of calorie restriction on the human breast, and the potential anti-cancer effects that this may have. She took up her consultant post in Birmingham in 2008. She spent one year as a locum geneticist working in the central and southern areas of New Zealand in 2011.
Kai Ren enjoys rock climbing, swimming, cycling and running and it trying to become a triathlete! She play the timpani in a local West Midlands orchestra, the Eroica Camerata.
Professor Peter Farndon CBE leads the team at the National Genetics and Education Development as the Centre's director, drawing on long standing interest and experience in genetic education. He holds an MSc in medical education and is a member of the Education Committee of the European Society of Human Genetics. He has been involved with the practical application of genetics for patients for over 30 years, recently retiring as a Consultant Clinical Geneticist. He gained an MD for research in Gorlin syndrome, a condition which predisposes to skin cancer. He was founding chairman of the Joint Committe on Medical Genetics, and of the UK Genetic Testing Network. He has held posts as an officer in the Clinical Genetics Society, British Society for Human Genetics and European Society of Human Genetics, where he was immediate past-chairman of the educaton committee.
He was an advisor for the genetics white paper, and a member of the Human Genomics Strategy Group. He was awarded a CBE for services to medicine in 2011.
Originally produced by Professor P. A. Farndon, Clinical Geneticist, Jim Costello (deceased) and Margaret Costello. We are reliant on a team of medical advisors for the clinical content of the website. We are grateful for their continuing support.
Gorlin Syndrome Group is Registered Charity in the UK - No 1096361