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Gorlin Syndrome Group

Supporting patients, their families and carers
 
Registered Charity No: 1096361
Supporting patients, their families, friends and carers affected by Gorlin Syndrome
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Patient Conference 2009
          
 



Also planned is fully supervised activities for the children meaning that parents can come along and participate fully in the day knowing their children are safe, happy and busy enjoying their day.  
 
Saturday, 24th October 2009
The event this year will take place at the Britannia Hotel in Birmingham.
 
All room bookings for those wishing to stay at the hotel should be made direct with staff at the hotel or on line.
 
The cost of the conference is £10.00 per adult, payable in advance and includes the costs of refreshments and lunch. There is no charge for children under the age of 16 years.
 
The booking form can be printed out and returned to us (address on form).  All bookings must be accompanied by a cheque made payable to the Gorlin Syndrome Group.
 
The programme will be published once all detail has been finalised.

Planning and organisation is now well underway and as in past years we are expecting a number of medical advisors and healthcare professionals. There will be chance to listen to presentations and ask questions about the condition and treatment options.

Also an important aspect of the conference is the opportunity to meet socially with other patients and their familes and to share experiences.




Speakers
We are awaiting confirmation from various speakers but are pleased to confirm that Professor Peter Farndon, Geneticist will be joining us.
 

Programme
A full and interesting programme is planned. 
 




Hotel and travel
Hotel
The Britannia Hotel is a reasonably priced 3* hotel located in the centre of the city. Single, double, twin and family rooms are available. 
 
Bookings for family rooms should be directed to Sarah in Conferencing direct at the hotel on 0121 631 3331
 

Travel
The hotel is close to motorway network and within minutes of public transport making this an ideal venue for the event.
 
 
If you have any queries at all about any aspect of the event, please do not hesitate to contact us.
 

 


 
 
 
 
Written and produced by Professor P A Farndon, Clinical Geneticist at the National Genetics Education and Development Centre UK, Jim Costello (deceased) & Margaret Costello, unless otherwise stated.